1 month post surgery

IMG_0922Tomorrow marks 1 month since Adia had bilateral hip surgery. And I can tell you with certainty that God answers prayers!

It is so hard for a parent to watch the doctors wheel their child back to the OR. But Adia was a champ and the surgery seems to have been a success.

Just before going back for surgery the doctor made the statement that is was possible, but not likely, they would be able to put her in a foam bolster rather than a full body spica cast. So this is what we prayed diligently for. Her fragile skin would never survived a cast. And God answered!!! She came out of surgery with a bolster that, like a cast, had to stay on 24/7 for 6 to 8 weeks. IMG_0942They said she was so well nourished that her bones were strong and this was a great option. What?! This girl that was starving just over a year ago?!

Adia’s pain level was pretty bad the first 2 days, but on day 3 she seemed to turn a corner and got to go home 2 days earlier than expected! And within 8 days she was off all pain meds (including Tylenol)! I always tell people she got her pain tolerance from her great-grandma!


Yesterday she had her 4 week post op appointment and was given the ok to take the bolster off. After only 4 weeks!! She will continue to wear a brace at night for the next 6 weeks, but is otherwise free to start getting back to normal as her stiff, weak legs will allow (as long as she doesn’t do anything that could cause her to fall).

We are in awe of what our Great God has done for our baby girl!! She is the strongest little girl I know!!! Just check out these before and after x-rays!



Preparing for hip surgery

A couple months ago we received the hard news that Adia would need surgery on both hips. A combination of her Cerebral Palsy and Ehlers- Danlos Syndrome have caused her hips to come nearly our of their sockets. If that were to happen, the pain would be terrible. In most cases this would be a one & done surgery, but her EDS will most likely cause this to be a fairly regular occurrence throughout her life. That is the hardest thing to swallow in all of this.

The surgery has been looming in the distance since that appointment, but now the day is almost here. Early Tuesday morning they will wheel our girl back to the OR and get to work “fixing” her hips. It will include lengthening tendons and cutting the bones to fit back in the sockets. That sounds terrible, right?! Then, after all that, she will be put in a spica cast from her chest down to her shin bones. And there she will remain for about 8 weeks.

I am so thankful we have the technology to correct issues like this. I am so thankful for doctors that know what they are doing and care for our children’s well-being, but I HATE that she has to endure all this! Today she is smiling and happy, not knowing what next week holds. It will be so hard on her! It will be so hard on us, her caretakers. But I have to believe it will all be worth it. I have to believe this will help her on her way to walking!

Will you pray with us for healing! For the surgeon’s hands, for pain management, for quick recovery and for sanity as she is immobile for so long. We have a long daunting road ahead of us. But we thank the Lord for His faithfulness and that He loves our girl even more than we do.