CP, EDS and many other things…

Adia has been part of this crazy family for just over 1 month. It’s so hard to believe. She has grown and changed so much. We have so very much to be thankful for!

I’m sorry the updates have been few and far between. I hope this gives you an idea how you can rejoice with us and how you can be praying for us.

Adia is getting stronger every day. She is working very hard to crawl, sits up a lot more and is learning what it means to be part of a family. She smiles and laughs the majority of the time and often acts like a normal 2 year old (which we count as a blessing!!). We have no doubt this little girl will continue to amaze us at every turn!

We knew from day 1 there would be a lot of unknowns with her health. A few weeks before traveling, Adia was diagnosed with Cerebral Palsy affecting her left side. We still don’t know the extent of how this will effect her, but we know there are a lot of things we can do to help her become as mobile and self sufficient as possible.

We were a little more surprised by her new diagnosis of Ehlers-Danlos Syndrome. Specifically, Adia has the Kyphoscoliosis type. Basically this is why she has weak muscle tone and loose joints. But it is also why she bruises and her skin tears very easily.

Her situation is a bit complex, but we have an awesome pediatrician that is familiar with EDS and CP and she already has us lined up to see several specialists (11 to be exact). So we have our work cut out for us just scheduling and making it to all these appointments. It will be so good to know more about her conditions and how we can best help her.

We are so in love with our little girl. We know God has an incredible plan for her life, and we are so blessed He has chosen us to be her forever family. Thank you for your prayers! Keep them coming!!


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