A week ago Tuesday evening I took Adia into Urgent Care because she seemed to be having a difficult time breathing. She had a cold that, with her Ehlers-Danlos and CP, I was afraid she wasn’t able to fight it as well as the other kids. Urgent Care called an ambulance and had her transferred to the ER and eventually admitted to the hospital for almost 6 days. It was a lot of sleepless nights and beeping… endless beeping. It still rings in my ears.
We posted cute pictures of her smiling and singing, but she wasn’t always happy. There were many moments of fear, frustration and sadness.
But through it all she was amazing and God thoroughly sustained us. We are so thankful for wonderful friends that were so helpful, the prayers of so many of you and the amazing group of medical professionals that took care of us.
They finally let us go home on Sunday and we had 1 full day free of hospital visits before our eldest child fell off the monkey bars at school and broke her elbow. Back we went to the ER. She is handling it well, but the reality that she now has 2 months of a full arm cast on her right arm is pretty tough on a 1st grader.
It has been a crazy, difficult week but we are so thankful for God’s mercies in so many little ways. We are thankful that Adia’s lung infection wasn’t worse. We are thankful that we were able to find moments of joy in a miserable situation. As adoptive parents, we were thankful for opportunities to really bond with Adia. And we are incredibly thankful Iona’s break won’t require any surgery.
Adia has been part of this crazy family for just over 1 month. It’s so hard to believe. She has grown and changed so much. We have so very much to be thankful for!
Our sad and scared little girl
One month later
I’m sorry the updates have been few and far between. I hope this gives you an idea how you can rejoice with us and how you can be praying for us.
Adia is getting stronger every day. She is working very hard to crawl, sits up a lot more and is learning what it means to be part of a family. She smiles and laughs the majority of the time and often acts like a normal 2 year old (which we count as a blessing!!). We have no doubt this little girl will continue to amaze us at every turn!
We knew from day 1 there would be a lot of unknowns with her health. A few weeks before traveling, Adia was diagnosed with Cerebral Palsy affecting her left side. We still don’t know the extent of how this will effect her, but we know there are a lot of things we can do to help her become as mobile and self sufficient as possible.
We were a little more surprised by her new diagnosis of Ehlers-Danlos Syndrome. Specifically, Adia has the Kyphoscoliosis type. Basically this is why she has weak muscle tone and loose joints. But it is also why she bruises and her skin tears very easily.
Her situation is a bit complex, but we have an awesome pediatrician that is familiar with EDS and CP and she already has us lined up to see several specialists (11 to be exact). So we have our work cut out for us just scheduling and making it to all these appointments. It will be so good to know more about her conditions and how we can best help her.
We are so in love with our little girl. We know God has an incredible plan for her life, and we are so blessed He has chosen us to be her forever family. Thank you for your prayers! Keep them coming!!